Patient and public involvement

Involving patients, carers and the public in the work that we do - whether that is seeking your feedback, welcoming you as part of our volunteer team, or simply providing more opportunities to participate in shaping the future of our hospitals - is incredibly important. We know that by involving and working in partnership with you, we can make the most of every opportunity we have to listen, learn and improve. That's why we want to better engage and involve patients, carers and the public.

Read more about our current patient forums and involvement opportunities below. You can also get involved through becoming a volunteer (opens in a new window)

You can also sign up to our Patient First mailing list (opens in a new window) so that you are able to keep up-to-date with the latest opportunities as well as news and events. 

Patient forums

Epsom and St Helier Hospitals Carers Forum

Carers are the largest providers of care and support in each area of the UK. A carer is defined as someone who looks after family, partners or friends in need of help because they are ill, frail or have a disability; the care they provide is unpaid.

We are on our way to becoming a more carer-friendly organisation, teaming up with local organisations and people to bring together expertise and enthusiasm from across healthcare and our communities. An action plan has been developed to help us, overseen by our Carers Steering Board.

We have also set up a carers forum, a community of current and former carers who can come together to provide information and support, share experiences and ideas, and to work with us to help shape the services we provide and improve the experience of young and adult carers. The forum meets quarterly, and will feed into the work of the Carers Steering Board. 

If you would like to express interest in joining this meeting and being part of the Carers Forum, or simply want to find out more, please contact:

Sarah Andrews, Patient Experience and Partnership Officer
Tel: 07876 315012 or 020 8296 4326
Email: esth.patientfirst@nhs.net

Cancer Patient Experience Forum

Are you a cancer patient, or are you a carer for someone who has cancer? Your experience is valuable to us and we welcome your comments and suggestions.

Come and join us to help improve cancer services in our hospitals.

View the Cancer Patient Forum poster May 2016 [pdf] 300KB

For further information please call Tarlika Patel on 01372 735456 (Epsom) or 020 8296 4730 (St Helier).

Current involvement opportunities

Dementia Steering Group

Our vision is to deliver high quality care to people living with dementia, in a dementia-friendly environment. We are revising our Dementia Strategy, which sets out what we are doing and will do  to achieve this vision.

To drive forward this work, the Trust has a multidisciplinary Dementia Steering Group, the role of which is to review analyse, develop, recommend, implement and evaluate good practice in the area of dementia care. A key part of the group will be having a patient and/or carer representative. The group currently meets once per month. For further information or to express interest, please email esth.patientfirst@nhs.net

South West London Health and Care Partnership - Cancer Psychological Services Working Group

Have you been affected by cancer and used psychological support services? Do you live in South West London? If yes to the above, please read on.

Psychological distress can be an ongoing problem for people who have been diagnosed with cancer. People who are living with cancer can be affected emotionally from the time that they are diagnosed, during their treatment and most commonly in the first year after diagnosis and many feel that they need additional support during this time.  

We know that 58% of people diagnosed with cancer feel that their emotional needs are not looked after as much as their physical needs (Macmillan, 2006).

We want to improve the quality of life for those affected by cancer and treat individuals with a “whole person approach” looking after both physical and mental health equally.

To help us do this, we will be setting up a “Cancer Psychological Services Working Group” which will meet once a month for an hour at our offices in Wimbledon. Attendees will include a mix of health and care professionals and patient and public voices.

No-one has a greater understanding of services than the people who use them. We would like to recruit two patient representatives who have been affected by cancer and have used mental health services during and/or after treatment to share their experiences and thoughts on our plans.

If…

  • You live in south west London (Croydon, Kingston, Merton, Sutton, Richmond, Wandsworth) and have recent experience of using cancer services within SW London
  • You can commit to a voluntary four hours every two months  (this includes attending meetings and reading papers) – out of pocket expenses will be reimbursed
  • You are passionate and committed to improving the quality of care for patients of south west London

For an application form or for more information please email or call Clare Thomas – Engagement Manager on clare.thomas@swlondon.nhs.uk or 020 3458 5231. Closing date for application forms is 28 October 2019.

South West London Acute Provider Collaborative

The South West London NHS Acute Provider Collaborative – Improvement Programme, led by Dr Andy Rhodes and Dr Elena Bechberger are working with the four South West London trusts:

  • Croydon University Hospital Trust
  • Epsom and St Helier University Hospitals NHS Trust
  • Kingston Hospital NHS Foundation Trust
  • St George's University Hospitals NHS Foundation Trust

They are focusing on improving several services across the region including:

  • Urology – with a special focus on the Kidney Stone pathway
  • Neurology – with a special focus on the headache and first seizures pathway
  • ENT – with a special focus on the Microsuction pathway

A key part of the improvement programme is to recruit a core group of patients, who have experienced care for the above conditions in hospital, and carry out qualitative research.

Patients will be involved in identifying the improvement areas for the services and helping the clinicians and project team create a service that is right for patients. This will initially be a meeting with other patients for around 1 to 1.5 hours to talk about your experience of the services and then a workshop with service managers, clinicians, GP etc. to plan how to improve current services available.

If this is something you would be interested in helping with, email heather.stewart@swlondon.nhs.uk.  

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