Patient and public involvement

Involving patients, carers and the public in the work that we do - whether that is seeking your feedback, welcoming you as part of our volunteer team, or simply providing more opportunities to participate in shaping the future of our hospitals - is incredibly important. We know that by involving and working in partnership with you, we can make the most of every opportunity we have to listen, learn and improve. That's why we want to better engage and involve patients, carers and the public.

Read more about our current patient forums and involvement opportunities below. You can also get involved through becoming a volunteer (opens in a new window)

You can also sign up to our Patient First mailing list (opens in a new window) so that you are able to keep up-to-date with the latest opportunities as well as news and events. 

Patient forums

Epsom and St Helier Hospitals Carers Forum

Carers are the largest providers of care and support in each area of the UK. A carer is defined as someone who looks after family, partners or friends in need of help because they are ill, frail or have a disability; the care they provide is unpaid.

We are on our way to becoming a more carer-friendly organisation, teaming up with local organisations and people to bring together expertise and enthusiasm from across healthcare and our communities. An action plan has been developed to help us, overseen by our Carers Steering Board.

We have also set up a carers forum, a community of current and former carers who can come together to provide information and support, share experiences and ideas, and to work with us to help shape the services we provide and improve the experience of young and adult carers. The forum meets quarterly, and will feed into the work of the Carers Steering Board. 

If you would like to express interest in joining this meeting and being part of the Carers Forum, or simply want to find out more, please contact:

Sarah Andrews, Patient Experience and Partnership Officer
Tel: 07876 315012 or 020 8296 4326
Email: esth.patientfirst@nhs.net

Cancer Patient Experience Forum

Are you a cancer patient, or are you a carer for someone who has cancer? Your experience is valuable to us and we welcome your comments and suggestions.

Come and join us to help improve cancer services in our hospitals.

View the Cancer Patient Forum poster May 2016 [pdf] 300KB

For further information please call Tarlika Patel on 01372 735456 (Epsom) or 020 8296 4730 (St Helier).

Current involvement opportunities

Dementia Steering Group

Our vision is to deliver high quality care to people living with dementia, in a dementia-friendly environment. We are revising our Dementia Strategy, which sets out what we are doing and will do  to achieve this vision.

To drive forward this work, the Trust has a multidisciplinary Dementia Steering Group, the role of which is to review analyse, develop, recommend, implement and evaluate good practice in the area of dementia care. A key part of the group will be having a patient and/or carer representative. The group currently meets once per month. For further information or to express interest, please email esth.patientfirst@nhs.net

University of Roehampton - Nursing programme

The University of Roehampton is currently developing its first nursing programme for September 2019. This unique Adult Nursing course will specifically focus on developing nurses to work in community or primary care settings. Service User and Carer involvement is a key part of the development and delivery of the programme, to ensure that graduates are fit for purpose and that they meet the needs of the community they serve. The University has an existing pool of Service Users and Carers, but they would very much like to increase this pool to reflect the diversity of the community. 

They are looking for people from a range of backgrounds and with a range of experiences of health and social care as a service user and/or as a carer. There are a variety of ways you can be involved, including:

  • Course design, development and evaluation 
  • Student recruitment and selection 
  • Sharing your story
  • Assessing students
  • Research        

In return, they offer induction, training, support and remuneration for your time. You can be involved as much or as little as you would like. To find out more, please email SUCC@roehampton.ac.uk.   

South West London Acute Provider Collaborative

The South West London NHS Acute Provider Collaborative – Improvement Programme, led by Dr Andy Rhodes and Dr Elena Bechberger are working with the four South West London trusts:

  • Croydon University Hospital Trust
  • Epsom and St Helier University Hospitals NHS Trust
  • Kingston Hospital NHS Foundation Trust
  • St George's University Hospitals NHS Foundation Trust

They are focusing on improving several services across the region including:

  • Urology – with a special focus on the Kidney Stone pathway
  • Neurology – with a special focus on the headache and first seizures pathway
  • ENT – with a special focus on the Microsuction pathway

A key part of the improvement programme is to recruit a core group of patients, who have experienced care for the above conditions in hospital, and carry out qualitative research.

Patients will be involved in identifying the improvement areas for the services and helping the clinicians and project team create a service that is right for patients. This will initially be a meeting with other patients for around 1 to 1.5 hours to talk about your experience of the services and then a workshop with service managers, clinicians, GP etc. to plan how to improve current services available.

If this is something you would be interested in helping with, email heather.stewart@swlondon.nhs.uk.  

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