Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

WHAT IS ME/CFS?

WHAT IS ME/CFS?

1.A short introduction explaining ME/CFS file Introduction to ME-CFS.pdf [pdf] 461KB

2. Getting started with ME/CFS GETTING_STARTED_for_CFS[1].pdf [pdf] 415KB

3. A detailed biological explanation of ME/CFS BACME-An-Introduction-to-Dysregulation-in-MECFS-1 (1).pdf [pdf] 777KB

4. A comprehensive ME/CFS Service leaflet on understanding ME/CFS Understanding_ME_CFS_Getting_started[1].pdf [pdf] 837KB

5. What we offer What we offer.pdf [pdf] 490KB

Energy management

Energy management

1. Pacing and grading activity file Activity Management- Pacing and Grading Activity.pdf [pdf] 710KB

2. How to complete and calculate an activity diary (with template) How to complete an Activity Diary v1.pdf [pdf] 677KB

3. Weekly planner template Weekly Planner (w) 2020.pdf [pdf] 217KB

4. Planning and baselines Planning and Baselines (w) 2020.pdf [pdf] 586KB

5. Rest What is Rest (W).pdf [pdf] 303KB

6. Sleep handout Sleep.leaflet.2.pdf [pdf] 791KB

7. Value based goal setting Value based goals and goal setting 2009 (w).pdf [pdf] 416KB

8. Relapse management Relapse_&_resource_list[1].pdf [pdf] 954KB

9. Pacing up Pacing Up.pdf [pdf] 499KB

Energy conservation

Energy conservation

The following links contain energy conservation tips for a variety of daily tasks:

Relaxation

Relaxation

1. Introduction to relaxation Introduction to relaxation.pdf [pdf] 567KB

2. Relaxation leaflet Relaxation leaflet 5th.pdf [pdf] 568KB

3. Breathing exercises 1 Breathing and Relaxation Links.pdf [pdf] 102KB

4. Breathing exercises 2 Breathing Techniques for CFS Symptom Control.pdf [pdf] 513KB

Coping with the emotional impact of ME/CFS

Coping with the emotional impact of ME/CFS

1. Local psychological support services Local services contact sheet - AKH.pdf [pdf] 433KB

2. Mindfulness Mind Mindfulness Booklet.pdf [pdf] 466KB

3. Obstacles to making changes Obstacles to making changes.pdf [pdf] 464KB

4. Self-compassion Self compassion and ME.pdf [pdf] 412KB

Healthy eating

Healthy eating

1. Diet Diet.pdf [pdf] 619KB
2 Nausea advice sheet Nausea general advice on diet.pdf [pdf] 594KB
3. Nutrition Nutrition.pdf [pdf] 281KB

Useful links

Useful links

1. Post-viral fatigue: a guide to management BACME Post Viral Fatigue A Guide to Management May2020.pdf [pdf] 681KB

2. Flu jab advice Flu jab advice ME CFS.pdf [pdf] 292KB

3. ME/CFS Awareness ME Awareness Booklet.pdf [pdf] 719KB

4. Memory and Concentration Memory & Concentration.pdf [pdf] 370KB

5. Travel tips Travel recommendations KW.pdf [pdf] 402KB

6. Resources Additional Resources for FSS and Web 2020.pdf [pdf] 529KB

7. Advice for students Advice for Students with CFS.pdf [pdf] 274KB

8. Pregnancy ME _ pregnancy.pdf [pdf] 152KB

9. Work resources Work Resources & links.pdf [pdf] 462KB

Useful organisations

Useful organisations

1. NICE guidelines myalgic-encephalomyelitis-or-encephalopathychronic-fatigue-syndrome-diagnosis-and-management-pdf-66143718094021.pdf [pdf] 539KB

2. ME/CFS Helplines file ME CFS Helplines.pdf [pdf] 563KB

3. Talking therapies in Surrey file Surrey-IAPT.pdf [pdf] 17MB

4. British Association of Clinicians in ME/CFS https://bacme.info/

Communication

Communication

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