Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

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Mission statement

Our mission is to support people living with ME/CFS to improve their quality of life. We offer time-limited, guided self-help that combines compassion and understanding with education and evidence-informed strategies. We provide practical tools and support to develop knowledge, acceptance, and sustainable self-management approaches that help people navigate the challenges of living with ME/CFS in ways that reflect their own needs, priorities, and circumstances.

WHAT IS ME/CFS?

WHAT IS ME/CFS?

1.A short introduction explaining ME/CFS file  Introduction to ME-CFS.pdf [pdf] 461KB

2. Getting started with ME/CFS  GETTING_STARTED_for_CFS[1].pdf [pdf] 415KB

3. A detailed biological explanation of ME/CFS   BACME-An-Introduction-to-Dysregulation-in-MECFS-1 (1).pdf [pdf] 777KB

4. What we offer  What we offer.docx [docx] 31KB

Energy management

Energy management

1. Pacing and grading activity file  Activity Management- Pacing and Grading Activity.pdf [pdf] 710KB

2. How to complete and calculate an activity diary (with template)  How to complete an Activity Diary v1.pdf [pdf] 677KB

3. Weekly planner template  Weekly Planner (w) 2020.pdf [pdf] 217KB

4. Planning and baselines  Planning and Baselines (w) 2020.pdf [pdf] 586KB

5. Rest  What is Rest (W).pdf [pdf] 303KB

6. Sleep handout  Sleep.leaflet.2.pdf [pdf] 791KB

7. Value based goal setting  Value based goals and goal setting 2009 (w).pdf [pdf] 416KB

8. Relapse management  Relapse_&_resource_list[1].pdf [pdf] 954KB

9. Pacing up  Pacing Up.pdf [pdf] 499KB

Energy conservation

Energy conservation

The following links contain energy conservation tips for a variety of daily tasks:

  1. Energy Conservation at Work.pdf 311KB
  2. Energy Conservation in Cleaning .pdf 515KB
  3. Energy Conservation in Gardening .pdf 446KB
  4. Energy Conservation in Infant Care pdf 427KB
  5. Energy Conservation in Laundry pdf 415KB
  6. Energy Conservation in Meal Preparation pdf 267KB
  7. Energy Conservation in Personal Care pdf483KB
  8. Energy Conservation in Shopping pdf 413KB
  9. Fatigue Management - energy conservation techniques.pdf 704KB
Relaxation

Relaxation

  1. Relaxation leaflet  Relaxation leaflet 5th.pdf [pdf] 568KB
  2. Breathing exercises 1  Breathing and Relaxation Links.pdf [pdf] 102KB
  3. Breathing exercises 2  Breathing Techniques for CFS Symptom Control.pdf [pdf] 513KB

Useful resources

  1. Work resources and Links :Work Resources & links.docx [docx] 146KB
  2. Travel recommendations (attached):  Travel recommendations KW.doc [doc] 168KB
  3. Additional references/resources (attached)  Additional Resources.doc [doc] 159KB
  4. Pregnancy and ME/CFS (attached)  ME _ pregnancy.pdf [pdf] 152KB
  5. Severe/Very Severe ME/CFS - Home - 25% ME Group 
Coping with the emotional impact of ME/CFS

Coping with the emotional impact of ME/CFS

1. Mindfulness  Mind Mindfulness Booklet.pdf [pdf] 466KB

2. Obstacles to making changes  Obstacles to making changes.pdf [pdf] 464KB

3 Self-compassion  Self compassion and ME.pdf [pdf] 412KB

4 Local services contact sheet  Updated_local_services_contact_sheet_SW_London_Surrey (1).docx [docx] 33KB

Healthy eating

Healthy eating

1. Diet  Diet.pdf [pdf] 619KB
2 Nausea advice sheet Nausea general advice on diet.pdf [pdf] 594KB
3. Nutrition Nutrition.pdf [pdf] 281KB

Useful organisations

Useful organisations

1. NICE guidelines link

2. ME/CFS Helplines file  v1ME CFS Helplines.docx[docx] 115KB

3. Talking therapies in Surrey file  Surrey-IAPT.pdf [pdf] 17MB

4. British Association of Clinicians in ME/CFS https://bacme.info/

Communication

Communication

  1. employers-guide-to-me-booklet-2016.pdf [pdf] 665KB
  2. How to tell your child 2022.pdf [pdf] 592KB
  3. MECFS-and-higher-education-sep-2020.pdf [pdf] 611KB

Get connected

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  • Follow us on LinkedIn 
  • Reviews on NHS Choices
  • Watch our videos

 

  • Like us on Facebook
  • Follow us on Twitter 
  • Follow us on LinkedIn
  • Review on NHS Choices
  • Watch our videos